Bioethics in Europe - course
Goal of the course: To learn about bioethical concepts, questions and possible answers which are seen important and central in different parts of the Europe.
Target group: Undergraduate students of different relevant disciplines at different European Universities. The possible disciplines include law, social sciences, medicine, and philosophy etc.
Organizers: Gabriele Werner-Felmayer, Helena Siipi and Susanne Uusitalo.
Teachers: Various teachers from different European universities with UNESCO Chair in Bioethics units. Each teacher gives one or two about 0,5-hour long lecture(s). The following questions are answered in each lecture: (1) What are the bioethically hot topics in your country at the moment? (2) How is bioethics done in your country? (3) What bioethical term or concept do you find interesting and useful at the moment? Why?
Method: Lectures are recorded and stored together to form a uniform Moodle-course. Each unit providing a lecture gets access to other lectures. Universities are free to choose how the stored lectures are used in their teaching. Students follow the lectures from the Moodle.
Length of the course: About 15 lectures
Credits: Each participating university is free to determine the amount of credits the students get from the course and on how the course is fitted to the teaching and to the studies of the students.
Networking & Collaboration
Developing online web platform listing names, teaching/research interests and contact links of European Division Unit Members for the purpose of increasing communication, coordination and networking possibilities.
Coordinators: Oliver Feeney & John Saunders
Project title: ‘European electronic Personal Health Records initiatives and vulnerable migrants: a need for greater ELSI safeguards’
Project abstract: The effective collection and management of the personal data of rapidly migrating populations is important for ensuring adequate healthcare and monitoring of a displaced peoples’ health status. With developments in ICT data sharing capabilities, electronic personal health records (ePHRs) are increasingly replacing less transportable paper records which, in addition to advantages of improving accuracy and completeness of information, seem self-evidently important for rapidly displaced and inherently mobile populations. In this project, we are assessing various emerging initiatives – such as Common Approach for REfugees and other migrants’ health and Re-Health/ Re-Health2 – that are seeking to develop migrant-centric ePHR responses in the European context in order to i) evaluate the benefits of migrant ePHRs versus non-ePHR options, ii) assessing the advantages and disadvantages of various forms of ePHRs (e.g. USB devices versus cloud storage) and iii) assessing the ethical, legal and social challenges of migrant-centric ePHRs.
Coordinators: Oliver Feeney & Ursela Barteczko
Method: A series of meetings and workshops will be organised bringing together members of the European Division involved in the project with a wider range of experts working in the fields of migration, healthcare, electronic PHRs, ICT, ethics, law, sociology, philosophy, politics as well as representatives from the existing migrant-centric ePHR initiatives, migrant groups and other relevant stakeholders.
Outcomes: A set of ELSI guidelines to ensure the positive ongoing development of migrant-centric ePHRs in the European context. Publications in academic journals and other forms of dissemination. Ongoing funding applications.
Publications (in progress of review/submission):
Oliver Feeney, Gabriele Werner-Felmayer, Helena Siipi, Markus Frischhut, Silvia Zullo, Ursela Barteczko, Lars Øystein Ursin, Shai Linn, Heike Felzmann, Dušanka Krajnović, John Saunders, and Vojin Rakić (2019) ‘European Electronic Personal Health Records initiatives and vulnerable migrants: a need for greater ethical, legal and social safeguards’ Developing World Bioethics (under review)
Oliver Feeney, Gabriele Werner-Felmayer, Helena Siipi, Markus Frischhut, Silvia Zullo, Ursela Barteczko, Lars Øystein Ursin, Shai Linn, Heike Felzmann, Dušanka Krajnović, John Saunders, and Vojin Rakić (2019) ‘eHealth responses to crisis migration: some ELSI considerations’ (for Eduardo Rueda, Juan Jorge Michel Fariña and Andrea Hellemeyer (eds) Bioethics and Human Rights)